Thursday, 12 October 2017

THE BLACK DOG

So, we all are fully aware of the stigma surrounding mental health, basically us humans function well at most things but for a lot when it comes to dealing with emotions basically we are crap, pure and simple and mental health issues are just not talked about, we should just be able to give ourselves a shake and get on with things, right??  Well not so true for a lot of people unfortunately, if it were that simple I wouldn't be where I am today.


For us it all started when out of tragic circumstances Trevor was left without his brother and mother within a three year period.  I know a lot of people deal with death and have lost parents, partners, children, family etc etc, it happens yes but everyone deals with death differently and for Trevor it was the loss of his brother aged 38 to suicide and his mother three years later to breast cancer that was the trigger for his breakdown and his clinical depression.

The change came gradually, it wasn't something that just happened overnight, not like a switch turning on or off, it was little changes spread over time.  After his brother died he sought out ways of understanding, that was the big thing with him, he just didn't understand how it could come to that and went looking for answers.  In doing so he came across a lot of spiritual practices, some of which I am sure did help but unfortunately a lot did exactly the opposite.  Now I am not knocking people's beliefs, far from it, but what you have to understand is that there are some people out there who can very easily manipulate someone in a vulnerable place and when Trevor underwent "spiritual counselling" that's what I believe happened.  He went to a darker place, he became paranoid about things, me especially.  I saw him change his whole outlook on life and his focus became on the past, the dead and the afterlife rather than the future and moving forward.  He became stuck.  This went on for a few years and times everything seemed normal enough and others, well not so normal.

By the time his mother died in 2010 things had been a bit more settled but her death hit Trevor hard, he was very close to his mother and I feared a repeat of the darkness he had been to but again there was a shift and this time it was the struggle to cope more than searching for answers.

In late 2011, early 2012 the depression had taken a firm hold.  For Trevor though he couldn't accept the fact that he was depressed, he viewed his feelings as him being lazy and he searched for ways out of it by throwing himself into projects, trying to keep himself as busy as he could but you cant mask it, if its there then there really is no escape.  He started to attend his GP for CBT (Cognitive Behavioural Therapy) and it is a good treatment but unfortunately Trevor's illness was too progressed for it to help him at that time, a few years earlier  maybe but not then at that point.  Anti-depressants were prescribed but unfortunately he deteriorated further and the GP was worried about his low mood and we were referred to the Crisis Team, I took leave from work to be there with him every day.  Some nights he slept, some he didn't.  He always felt worse in the mornings, very low after waking up and he talked about taking his life on a daily basis.  His medication was changed time and again but it just wasn't helping so in March of 2012 we agreed to undergo ECT (electroconvulsive therapy) which fortunately he was able to do as an outpatient.  He had this treatment twice a week for 6 weeks, 12 sessions in total.  I went with him every time, saw him being taken down on the bed, waited on him coming back out half hour later teary and emotional.  It was heartbreaking knowing what was happening to him but we were desperate and would have tried anything at that stage.  Half way through the treatment he said he didn't feel it was helping but by the end of the course he really was a different person.  I could see so much of "the old him" back.  Things were finally looking like they were improving after so long.  He could accept (partly) that he suffered from depression and was looking forward, no thoughts of life not worth living, no intentions to end his life, he was looking to the future.

Slowly things started to settle down again and I was able to go back to work full time.  Ella was born in July 2013, we were planning to build our own home, Trevor was starting to get himself back into living again and the future looked a lot brighter for us.  Then in late 2015, early 2016 his mood just dipped again.  It was heart wrenching to watch it happen again.  This time it happened quicker, I wouldn't say instant but a lot quicker, he saw the Crisis Team again early March and was admitted to hospital on 22nd.  I wanted to be able to care for him again at home but with Ella now in the mix too there were more things to consider and both he and the Doctors felt he would be better in hospital.  After a couple of weeks they began ECT treatments again, he had 11 sessions in total, there was an improvement but they just didn't have the same effect as the first time.  He was released home after 7 weeks but was only home for a few days when he was readmitted, he just couldn't cope, he had suicidal thoughts again and he just wanted us to get on with our lives and leave him in hospital for the rest of his life, we'd be better off, in his words and opinion.

After a couple of weeks he was due to be released home again when he self harmed, in hospital.  His medication was again changed and he was prescribed Lithium.  After 5 weeks he was ready for home, yes he was not near his "normal" self but as close as we had seen in a long time, he wanted home, he felt so isolated in hospital and we both felt it was detrimental to his recovery, the Dr agreed and he was allowed home.  To me he really was improving, he realised he had a long journey but he wanted so desperately to get better and move on.  One of the major problems for Trevor was that medication had no effect, it didn't matter what they tried, it made no difference to his mood.  The Doctors and Mental Health Team all acknowledged this and accepted that a different course of treatment would be needed for Trevor and we had been waiting on a referral for counselling as Trevor responded better to this form of treatment than actual medication.  Unfortunately the referral letter hadnt even come through by the time he died.

So thats basically Trevor's story with his depression, shortened down from 10 years into a few paragraphs.  For me the worst thing was watching it happen and not be able to do anything about it.  Once we got past the stage that I wasnt "messing with his head" and trying to kill him (I kid you not!) then he did talk to me about how he felt.  By 10 or 11 each morning you could rest assured I'd have had at least 3 texts or calls because mornings were hard for him.  To the outside he was ok, yes those who were close to him knew of his struggle to cope with the deaths and he would become very emotional about talking about them but I dont think anyone realised just how bad it was, just by looking at him.  Albeit he did during the last phase of his illness loss a lot of weight and really didnt look like "my" Trevor, but he was still in there, I'm only sorry I couldnt bring him back to us x

This post has been a longer one and I hope some of you managed to get to this point, thanks again for bearing with me, youve all been such a great support. 

3 comments:

  1. Oh lovely this must be so hard for you, I'm so proud that you have the courage to speak up and speak out to try and help others. Stay strong - we've got you back - and keep walking towards the light.

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  2. So brave of you to share this xx

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  3. Once again you bravely share. I'm so proud of you, keep going my lovely xx

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